Being Patient

46 articles in the TruthFoundry index. Each links out to the original.

• Retired Psychiatrist Diagnosed with Rare Alzheimer's Variant Affecting Vision · Scott Cunningham, a retired psychiatrist, was diagnosed with posterior cortical atrophy after struggling with vision and spatial tasks.
• Artist Finds Peace Through Painting as Mother's Dementia Progresses · Robert G. Fishman uses deconstructed landscapes to accept his mother's fading memories while cherishing what remains.
• Three Health Notifications Shaped One Man's Alzheimer's Risk Journey · Retired patient advocate Ron Carr shares three life-altering personal health notifications.
• Study Identifies Genes That May Protect APOE4 Carriers From Alzheimer’s · Researchers found protective genes and cell targets for APOE4-related Alzheimer’s risk.
• Patients and Caregivers Often Detect Early Alzheimer's Symptoms · Former patients Scott Cunningham and Sean Terwilliger describe how they were the first to notice early signs of Alzheimer's before doctors.
• FDA-Approved Leqembi and Kisunla Modestly Slow Early Alzheimer's Progression · New monoclonal antibodies Leqembi and Kisunla modestly slow cognitive decline in early Alzheimer's but carry risks of brain swelling and bleeding.
• Sean Terwilliger diagnosed with early-onset Alzheimer’s after 4 year wait · Sean Terwilliger received early-onset Alzheimer’s diagnosis after four years seeking medical testing.
• FDA Approves AbbVie's Once-Daily Parkinson's Drug Juvmo · FDA approves AbbVie's Juvmo, a once-daily pill for Parkinson's, targeting D1 and D5 receptors to reduce side effects.
• Physician Explains Repeat Cognitive Testing Tracks Brain Health Trajectory · Geriatrician Dr. Nathaniel Chin argues repeat cognitive tests outperform single tests.
• MAPT Gene Alzheimer's Research May Unlock Frontotemporal Dementia Treatments · Alzheimer's MAPT gene research could advance frontotemporal dementia treatment access.
• When People With Dementia Should Stop Driving: Expert Guidance · Medical and occupational experts outline risks and warning signs for dementia drivers.
• Being Patient launches survey on home Alzheimer’s behavioral symptoms · Being Patient seeks public input on early home Alzheimer’s symptoms for research.
• Repetitive Head Impacts, Not Concussions, Drive Long-Term Brain Health Risks · Research indicates cumulative head impacts, rather than concussion count, are the primary driver of long-term neurological risks like CTE.
• Targeting Brain's 'Zombie' Cells Offers New Hope for Alzheimer's Treatment · Researchers are testing senolytic drugs to eliminate senescent 'zombie' cells that may drive Alzheimer's disease progression.
• Physician advises caregivers on managing agitation in dementia patients · Dr. Henley advises caregivers to focus on emotion and redirect dementia patients instead of correcting facts.
• Caregiver Juana Libedinsky Preserves Identity Through Tennis and Reading During Husband's Trauma · Juana Libedinsky advises caregivers to fiercely protect one personal hobby to maintain their identity during crisis.
• Long-term social connection linked to preserved brain health in older adults · Research finds consistent social belonging supports healthy brain function as people age.
• Common Dementia Behaviors Explained With Caregiver Response Strategies · Article outlines dementia behavioral symptoms, causes, and evidence-based caregiver response methods.
• Dr. Gil Carvalho Explains Evidence-Based Diets For Brain Health · Dr. Gil Carvalho outlines dietary patterns linked to reduced dementia risk.
• Caregiver Kristin Carpenter Reflects on Finding Life After Husband's Alzheimer's Diagnosis · Kristin Carpenter describes how she and her husband Dave found ways to keep living fully after his young onset Alzheimer's diagnosis.
• Dementia Agitation as a Signal: A Physician's Guide to Causes and Care · Psychiatrist David Henley explains that agitation in dementia often signals fear, confusion, pain, or unmet needs, and offers behavioral care strategies.
• Researchers Investigate Gut Origins of Parkinson's Disease · Scientists explore whether Parkinson's disease may originate in the gut before spreading to the brain.
• Deborah Kan's Lyme Disease Diagnosis: Testing, Co-infections, and Treatment · Deborah Kan explains why her late-stage Lyme test was positive, the risks of co-infections, and her 30-day doxycycline treatment.
• Guide to Advanced Dementia Care: Comfort, Hospice, and Key End-of-Life Decisions · Being Patient guide explains advanced dementia care, covering care goals, health proxies, hospitalization risks, and end-of-life options.
• FDA Approves Lantheus Tauklarify PET Scan for Complex Alzheimer's Diagnosis · FDA approves Lantheus Tauklarify PET scan to clarify complex Alzheimer's cases and guide anti-amyloid therapy decisions.
• Physician Recounts Caregiver's Fatal Self-Neglect, Urges Support for Dementia Caregivers · Dr. Em Wong argues dementia caregivers must care for themselves, citing a patient's fatal case.
• Expert Guide: Recognizing Signs It's Time for Increased Dementia Care · Care expert Cory Fosco outlines safety, medical, and social signals indicating a dementia patient needs higher-level care.
• Scientists Identify Four New Genes Linked to Alzheimer's Risk · A new study identifies four genes regulating immune system inflammation as potential new risk factors for Alzheimer's disease.
• Author Diagnosed With Lyme Disease After Seeking AI Advice · Deborah Kan tests positive for Lyme disease after consulting AI and specialists regarding persistent skin lesions.
• Bilingualism May Delay Dementia Diagnosis Rather Than Prevent It · Research suggests speaking multiple languages delays dementia diagnosis by 2-5 years but does not necessarily lower the risk of developing the condition.